China Daily article notes importance of combatting discrimination in the fight against AIDS

// October 31st, 2008

HIV/AIDS prejudice still rife, study finds

By Li Aoxue (China Daily)
Updated: 2008-10-31 07:32

A survey taken in six major cities in China shows that most adults discriminate against HIV/AIDS sufferers

The survey, from February to March, was conducted by Renmin University of China with financial and technical support from UNAIDS.

The survey covered 6,000 people and 30 percent said children suffering from HIV/AIDS should not be allowed to attend school, 65 percent were not willing to stay in the same room as a sufferer, and 48 percent would not share a meal with them.

"HIV/AIDS discrimination must be eliminated in order to encourage sufferers to seek treatment," Edwin Cameron, a South African AIDS prevention expert, said.

Bernhard Schwartlander, United Nations country coordinator on HIV/AIDS in Beijing, said the virus is not unmanageable medically, and people seeking treatment can keep it under control.

However, some people refuse to seek treatment, because they are afraid to let others know of their illness.

"People I have encountered in China have told me they suffer from discrimination, and some of them have stopped in the middle of treatment," Cameron said.

"People die from it and I think it is a tragedy as the Chinese government provides good programs."

The treatment in China covers all 31 provincial regions.

The World Health Organization (WHO) said the number of deaths from HIV/AIDS can decrease globally with proper and timely treatment.

The WHO in an earlier forecast said there would be about 6.5 million deaths from HIV/AIDS in 2030 worldwide, but it has now revised the figure to 1.2 million, because of the use of high active antiretroviral therapy in developing countries.

South African High Court Judge and renowned AIDS activist Justice Edwin Cameron visits China

// October 31st, 2008

Justice Edwin CameronJustice Edwin Cameron, a South African High Court Judge and renowned AIDS activist left China today after a week-long visit to China.  Justice Cameron was infected with HIV in 1985, and in 1999 became the first senior South African official to state publicly that he was living with HIV.  Since then, he has visited many countries to spread the message that HIV is a medically manageable disease and not a death sentence, and that fighting stigma and discrimination is key to fighting the disease.  

During his visit to China, Justice Cameron met with top-level officials from China's Ministry of Health and Centre for Disease Control and gave talks at two of China's most prestigious universities - Peking University and the China University of Political Science and Law.  He also met with people living with HIV, grassroots activists, and people working in the field of HIV prevention and care.

At the end of his visit, Justice Cameron said that from what he had seen and heard, stigma and discrimination is just as serious in China as in South Africa and that this must be addressed not just through government policies, but also by civil society involvement and grassroots activism.   

New UNAIDS survey shows critical importance of PTE’s work in awareness raising and stigma reduction

// October 24th, 2008

A new survey carried out by UNAIDS and China’s Renmin University has shown that there is a serious lack of understanding surrounding HIV and AIDS in China, and that levels of stigma and discrimination are dangerously high.  The findings highlight the critical importance of PTE’s programs to address stigma and discrimination in the fight against AIDS in China.   

The study asked over 6000 respondents from six Chinese cities a series of questions to evaluate their knowledge, attitudes, behavior, and practices related to HIV and AIDS.  Among the key findings were:

-    Only 19 percent of interviewees said they would use a condom if they had sex with a new partner and nearly 30 percent did not know how to use a condom correctly

-    Nearly half of interviewees would not be willing to eat with a person infected with HIV, and 63 percent would not be willing to have their hair cut by an infected person

-    11 percent of respondents had had sex with people who were not their spouse, or regular partner during the past 6 months, and 42 percent of these had not used a condom

-    32 percent of people thought people with HIV/AIDS deserved their disease because of their sexual behavior or drug abuse

-    Nearly 90 percent of respondents felt they were not at risk of HIV transmission.

(the full study can be found here http://www.unaids.org.cn/uploadfiles/20080925150557.pdf)

These figures all show why PTE’s programs are so important.  People are not getting the information they need to protect themselves, and serious knowledge gaps are leading to stigma and discrimination, which prevents people from learning about HIV and getting themselves tested.  PTE’s groundbreaking peer-counseling website, www.hivzx.com, has now been up and running for almost a year, and has already been visited by tens of thousands of people searching for information on how to protect themselves.  Thousands of people have spoken to peer counselors and have found answers to questions which they couldn’t get answered anywhere else.  
In the run up to World AIDS Day on December 1st, we at PTE will be working to overhaul hivzx.  We will be totally redesigning the site to make it more attractive and easier to use, uploading new, improved content, specially designed to be attractive to young people and recruiting a new team of volunteers, to ensure that the site is fully staffed, and volunteers can always speak to a peer-counselor.   For World AIDS Day, we will also be holding a launch event to get hivzx in the spotlight so more people can learn about it and start to use it.  We hope to see you there!

PTE 2008 Spring Newsletter

// May 1st, 2008

The Director's Note

Dear PTE Supporters,

Greetings from an increasingly temperate Beijing. In the months since the last PTE newsletter went out we've experienced some amazing growth and are better positioned than ever to educate the hundreds of millions of Chinese youth about HIV/AIDS.

In December of 2007 we launched our HIV/AIDS peer counseling website, www.hivzx.com.  While its still in its "beta launch" phase, it is in many ways very awesome. Read more about HIVzx.com below.

We've also begun our first series of teacher training programs, completing training workshops in Fangshan County of Beijing and in Tianjin. Working closely with the CDC and local education administrators we've been able to train 70 teachers to be HIV/AIDS educators in their schools.

These past few months saw PTE receiving some good press coverage. A nice cover shot and story about PTE appeared in local Beijing expat magazine, That’s Beijing. There was also a good quote from me in an interesting post on the Newsweek website and another article in the December edition of another local expat magazine.

We are proud to announce that we've brought on Carl Wang as a full time staff member to serve as PTE's Deputy Director. Carl has been an instrumental part of the PTE team since 2005 and will be heading up the operational side of PTE as I initiate an effort to bring on the "2nd generation" of PTE leaders, a move that will be critical to our long term success. Read more about Carl below.

As always, your thoughts, emails, questions and donations are very much appreciated!

All the best from Beijing,
Gabe Suk
 

The Story of HIVzx.com

Launched on December 1st, 2007, HIVzx.com is PTE's latest initiative to reach China's youth with HIV/AIDS education.

As a grassroots organization, launching an innovative website with specialized technology is something that requires patience, vision and most importantly, the unending dedication of an outstanding corps of volunteers.

The idea to start HIVzx.com came in the summer of 2007 during a planning meeting that was designed to brainstorm cost-effective ways to achieve a presence across the vast geographical expanse of China.

An idea to register and staff specialized MSN messaging accounts quickly evolved into a quest to build a comprehensive online peer counseling chat interface.

Web conversation is the language of China's youth and online chatting is the method of communication that they feel most comfortable communicating in. HIVzx.com offers an opportunity to China's youth to open up and seek out and receive information they might not otherwise feel comfortable accessing.

In August of 2007, teams of web developers were assembled and set off working on the task of writing code and designing the site. Simultaneously, a three-part peer-counseling module and corresponding tests were written to train peer-counselors with.

From it's soft launch in December of 2007 through to today the site has undergone numerous changes, upgrades of technology and additions of functionality.

On an average day there are around 10 people coming to the HIVzx.com site asking questions ranging from where and how to get tested for HIV to expressing concerns about their sexual health. In addition the HIVzx.com mailbox gets around 5 emails queries a day with questions of a similar nature.

To meet this need there is a group of 35 peer counselors who take turns monitoring the site and the email box throughout the week.

HIVzx.com is a web 2.0 solution to meet the staggering lack of knowledge about HIV/AIDS and the intense desire by the youth of China to reach out for answers on a topic that frightens them much but one they have such little access to information about.

While still very much in its infancy, the initial results are impressive and HIVzx.com stands to be a valuable asset in PTE's quest to bring HIV/AIDS education to China's youth.
 

Carl Wang joins PTE as Deputy Director

In January of 2008 Carl Wang joined PTE in a role as deputy director. His job involves overseeing all operational aspects of PTE programs including volunteer coordination, curriculum development and teacher training instruction.

Hailing from the city of Hangzhou in southern China’s Zhejiang Province, Carl came to Beijing in 1999 to study chemistry at the prestigious Beijing University. Carl has been working as a volunteer for PTE since 2005, heading up all local training and teaching sessions where he brings his unique energy and depth of knowledge about HIV/AIDS to Chinese students and teachers.

After leaving the world of carbon trading in November of 2007, he prepared to make the full time commitment to working in the nonprofit sector.

Wang commented, "Working with PTE over the past two and a half years has been one of the most enjoyable parts of my life and the opportunity to make educating Chinese youth about HIV/AIDS my full-time pursuit was something I just couldn't pass up. There will be time later on in life for business pursuits and post-graduate study, but as my favorite politician Barack Obama always likes to speak of, we cannot ignore the fierce urgency of now, and that is what I think PTE is addressing here in China. There is just such little knowledge and so much stigma and discrimination.”
 

PTE Begins Teacher Training Program

On March 28th, 2008, PTE conducted its first teacher training program in rural Beijing's Fangshan County.  A group of 50+ teachers representing 45 schools from around the County came to Fangshan Number Three middle school for a day long teacher training course run by Carl Wang of PTE and the Fangshan County Centers for Disease Control.

Teachers were trained in the basics of HIV/AIDS information and walked through PTE's unique curriculum model that they will be implementing in their schools during the coming school semester.

With strong support of the local education officials this first teacher training program set a strong precedent for work to come and will serve as the jumping off point for a further expansion of the program in the coming months.

  

  

  

  

  

  

  

  

  

  

  

  

  

  

In this issue

Help PTE Grow

As PTE continues to expand the size and scope of our work in China, your contributions are more critical then ever in ensuring we have the financial resources to continue to enact positive change.

Please consider making a donation to PTE in the coming month in order to help us continue to make a difference in China.

Tax-deductible donations can be made online or by check sent to the PTE office.  See our donation page for more information.

Pass it on

If you know someone who may be interested in receiving this newsletter, you can easily forward up to five copies

PTE in the News

// March 10th, 2008

An article from Beijing expat magazine, City Weekend:
Fighting the Stigma of HIV

 

PTE brings HIV education to China's schools

The teacher started from scratch in a recent lesson on AIDS to sixth-graders: “Nobody ever dies of AIDS or HIV; they die of a common illness because their body is too weak to fight anymore.” Twelve-year-old hands shot up to answer questions such as, “What’is the difference between AIDS as a disease and HIV, the virus?” There was no squirming in seats, no giggling over broken taboos and no reason to look away because the kids were learning to about how the disease affects the body rather than the means of HIV transmission.

This approach was pioneered by Gabriel Suk, founder of the nonprofit, Prevention Through Education (PTE). After working on AIDS prevention in South Africa, Suk came to China three years ago and founded an NGO to raise awareness and dispel the discrimination that surrounds the disease. “People aren’t getting tested because they’re afraid of being discriminated against. Who goes to the doctor and refuses a blood pressure test? No one,” explains Suk. “Our program is founded in anti-discrimination, because if people never get tested, they can’t get treated, and they never stop spreading the virus.”

In his survey of 400 Chinese middle school students, Suk found that three fourths believed regular exercise might help prevent the spread of HIV. Less than one third of students would feel comfortable befriending someone with HIV. And only 16 percent knew there were medicines that can slow the advancement of the virus in one’s body.

This knowledge gap, Suk explains, can mean that people with AIDS lose their jobs, are ostracized from their families, or looked down upon as some kind of bad person. Stigma prevents people from getting tested for the disease.

“Worldwide only about 10 percent of HIV positive people actually know they have it,” Suk points out. “A major reason that people don’t get tested is they are afraid of how drastically their lives would change if they tested positive. Some of this would be health related, but a majority of the change would be the way others look at and treat them.”

As a public health policy, China has been trying to raise awareness about AIDS, but primarily among adults. “We look at education as a way to change the way communities as a whole think, respond to, and live with the HIV virus,” Suk said. “The world needs to change the way we look at the virus.” Little by little, classroom by classroom, he is prompting such a change.

–Blake Stone-Banks

PTE in the News

// February 3rd, 2008

 PTE was featured in the December issue of That's BJ Magazine:

Gabe on Thats BJ Cover

TBJ Page 2

Gabe Pic

Washington Post Op-Ed About Losing the AIDS Fight

// October 12th, 2007

Richard Holbroke, the director of the Global Business Coaltion on HIV/AIDS and former US ambassador to the UN, recently wrote an op-ed article in the Washington Post talking about how we are still losing AIDS Fight.  I couldn't agree with him more.

Having spent more than two years now developing and running PTE, I am acutely aware to the sensitivities in the field for anyone to criticize the work of the nonprofit community.  There is a perception that "we" in the nonprofit world can do no wrong, or at the very least, that any effort is a good effort, even if the results aren't that great.

The lack of accountability for nonprofit's is astounding.  The amount of waste in terms of time and resources that I see, also astounding.  The perception that a nonprofit organization means well, therefore is well is a drain on global resources.

I see the collective inability to critically analyze the work that the nonprofit community does as a byproduct of a fear of failure.  No one really wants to accept the notion that a massive effort made in the name of "philanthropy" could ever be wrong.  But as a whole, if we are afraid to fail, is it ever really possible to succeed? 

A change of course in the way the world is responding to the HIV epidemic is still possible, the question that remains to be answered is whether global citizens, nonprofit leaders and philanthropists are able to take a critical look at what has transpired over the past 25 years and be able to stand tall and proud for the accomplishments made to date, but find the humility to realize that the path we are on now is not the right one.

Voices like Mr. Holbrooke's are powerful and his message right on, but it will take more than one or two people to make the changes necessary. 

PTE strives to embody this kind of change in the work we do and the approach we take towards addressing the HIV epidemic, which certainly will not change the way the world responds, but we are at least doing our best to follow Gandhi's advice of "be the change you want to see in the world."

Here is the article: 

Still Losing the AIDS Fight

By Richard Holbrooke

Tuesday, October 9, 2007; Page A17

On the day you read this column, an estimated 12,000 people worldwide will contract HIV. Ninety percent of them, about 10,800 people, will not learn they are infected until full-blown AIDS hits them — in 2015. Until then, those people will unintentionally spread the virus that lies silently within each of them.

But on Dec. 1, the 19th annual World AIDS Day, political leaders and international health officials will, once again, tell the world that although the fight is far from over, progress is being made. The fight is indeed far from over — but don't believe the second half of such statements.

It is heartening that more than 2 million HIV-positive people are on lifesaving antiretroviral drugs (ARVs), thanks to generous programs from the United States, the European Union, the Global Fund, the Gates and Clinton foundations, and others. Americans should take pride in the fact that, with official aid of over $13 billion since 2003, the United States has led the world in a manner that evokes generous programs of the past such as the Marshall Plan.

But real progress must be measured by the only criterion that ultimately matters: Is the number of people who are HIV-positive declining? The answer is a resounding no. The number of people infected each day still far outpaces the number of people going on treatment each day. Anthony Fauci, the famed director of the National Institute of Allergy and Infectious Diseases at the National Institutes of Health, has stated the case in dramatic terms. Speaking in July at an international conference, Fauci said: "For every one person that you put in therapy, six new people get infected. So we're losing that game." He went on to say, "Clearly, prevention must be addressed in a very forceful way."

As a strategy to defeat HIV-AIDS, focusing primarily on treatment will never succeed; it can only keep (some of the) people already infected alive, and then only as long as they take ARVs every day for the rest of their lives. (If they stop taking ARVs, even for a few days, their infection will probably become drug-resistant.)

The only way to reverse the spread of the human immunodeficiency virus is to focus on prevention. If ever an ounce of prevention was worth a pound of cure, this is the case, since HIV lives undetected in people for about eight years before it explodes into full-blown AIDS. Here's the problem: More than 90 percent of the world's HIV-positive people do not know their status and unintentionally spread the virus for those eight years — to their wives, lovers, people with whom they share dirty hypodermic needles, almost anyone.

With a vaccine apparently a decade or more away (another major clinical trial failure was announced last month) and a safe microbicide for women still eluding researchers, prevention needs immediate emphasis and far, far more resources. But most of those fighting HIV-AIDS — dedicated, hardworking people — are still reluctant to admit that current prevention strategies are failing. A viable prevention strategy would encompass education and counseling, free condoms, female empowerment, more male circumcision, and abstinence.

But none of this will work without widespread testing — highly confidential but highly encouraged (which can now be done with simple, cheap 15-minute tests). I have been criticized in the past by some in the international health community for advocating testing, on the grounds that it would violate people's privacy. This is, of course, not my intent: Confidentiality must be respected.

And attention must be paid when Dr. Fauci speaks. Along with former president Bill Clinton, he is one of the few who have publicly advocated vastly increased testing as part of a strategy to stop the spread of HIV. (Even in the United States, according to the Centers for Disease Control and Prevention, at least one in four Americans with HIV do not know they are infected.) In no other medical epidemic in modern history has detection been such a low priority. But because HIV is sexually transmitted, it still carries stigmas in much of the world, including, until fairly recently, the United States. Those with AIDS lose jobs, are thrown out of their families, are denied medical help and are left to die alone. These appalling but widespread reactions lie behind long-standing international guidelines that testing should be completely voluntary.

Here is my challenge to the international health community: This year, tell the truth on World AIDS Day. Admit that we are still losing. Advocate strategies that emphasize prevention and detection, based on the successful "opt-out" testing systems being tried in Botswana, Lesotho and Malawi. If current policies are not changed, we will face uncontrollable growth in the costs of treatment of the victims of a disease that should be, as Bill Clinton has said, completely preventable.

Richard Holbrooke, president of theGlobal Business Coalition on HIV/AIDS, Tuberculosis, and Malaria, writes a monthly column for The Post.

 

Latest PTE Newsletter

// September 12th, 2007

The State of the PTE

September 12, 2007

The Directors Note…

Greetings PTE Supporters,

In this edition of the State of the PTE we introduce our latest project: an HIV/AIDS information and peer counseling website for Chinese youth.  Also included is a link to an interview I did with NPR and an analysis of a recent story in the news about rising HIV infection rates in China. 

Before we get to the meat of  the newsletter, please consider this:

As we at PTE continue to expand our work in China we are facing some serious financial hurdles in the coming months.  A small donation from you can make a big difference to us.  Please consider making a tax deductible donation which will help us continue to provide dynamic HIV/AIDS education programs to China's youth.

Finally, a huge thank you goes out to Judy He for creating this new PTE newsletter.

Best Regards from Beijing,

Gabe Suk, Executive Director
PTE-china.org

PTE Prepares to Launch Dynamic New Website for China's Youth

PTE is preparing for a  Dec. 1st (World AIDS Day) launch of its HIV/AIDS information and peer counseling website HIVzx.com.  

Designed as a way to reach the 162 million internet users in China, HIVzx.com provides PTE with a unique opportunity to reach millions of youth who previously had no access to HIV/AIDS information and no opportunity to receive real time feedback and counseling on questions they have about HIV/AIDS.

HIVzx.com is one part information website with essential targeted facts about the HIV virus, and one part live forum where youth can go to chat online with trained peer counselors.  The website's information is based in the PTE philosophy that stresses education about HIV basics, anti-discrimination, the importance of testing and the power of anti-retroviral treatments.

The name "ZX" is derived from the Chinese words for counseling, Zi Xun and to be online, Zai Xian.

20 million of the internet users in China are under 18, and about 13% of those are literally addicted to the internet.  A recent survey detailed in a Reuters article reported that when Chinese students were asked what they did during their summer vacation, a vast majority answered: played on the internet.

The only website of its kind, HIVzx.com will be the go-to resource for youth in China looking for information about HIV/AIDS. It will also provide possibly their only opportunity to ask someone questions about HIV/AIDS.

PTE on NPR

This past August PTE director Gabe Suk was a guest on Chicago NPR affiliate's Worldview program.  During the interview he talked about the history of PTE, it's current programs and plans for the future.

For those who haven't heard the whole PTE story, or are just interested in hearing what Gabe had to say, you can listen to the interview at this page.

Report on the Rising Rate of HIV Infections in China

China has reported 18,543 new HIV infections in the first half of 2007, which is near the reported number from all of last year. A figure that is certainly worrying and indicative of China's growing epidemic, but also a bit confusing.

The Reuters article starts out with the simple facts:

"China reported 18,543 new cases of HIV/AIDS in the first half of this year, state media said, near the number for the whole of 2006.

Drug abuse was the main cause of new infections, Xinhua news agency quoted Han Mengjie, an official with AIDS Control Work Committee of the State Council, as saying in a report on Saturday."

There is always a large discrepancy between the amount of reported cases and the amount of actual or estimated cases. This stems from lack of surveillance as well as the fact that worldwide only around 10% of HIV positive people actually know they are positive. If we take a conservative estimate for China and say that 20% of people who are HIV positive know their status we could estimate that 18,543 reported infections translates to 92,715 actual infections.

Further confusing is the fact that most new infections this year are reported to be drug related despite the fact that the government recently came out with a press release with the info that sex just overtook needle sharing as the main means of HIV transmission in China .

The article continues:

"Han also warned of the danger of the virus spreading to the general public through unsafe sex and the greater migration of the infected population.

China has become increasingly open about AIDS in recent years, facing up to an epidemic once stigmatized as a disease of the West."

The first point is incredibly important as once the virus embeds itself in the general population, it will be devastatingly difficult to fight its spread. While China has become more open about AIDS in recent years and there has been some phenomenal leadership on the issue from the powers that be in Beijing, there is still a lot of work to do on the local levels in preparing the infrastructure to deal with the growing infection rates.

One of the main things that can be influenced in a cost effective and efficient manner is attitude towards the virus, which is what PTE is trying to change. As long as HIV is viewed as a virus of outsiders that affects the dredges of society, no country stands a chance in fighting it back.

It's impossible to try and fix a problem when people remain oblivious or negligently under-informed about it. As long as discrimination continues to flourish and HIV is stigmatized as something people get for misbehaving we have no hope of curbing its spread.

AIDS education isn't about going into a classroom and telling kids the do's and don'ts of sex and drugs. It has to do with helping people understand the disease, fighting back stigma and preparing society as a whole to accept it as a public health concern like obesity, heart disease and cancer. One that is treatable, not limited to affecting "bad people" but most deadly if ignored.

"The nation had 214,300 officially registered cases of HIV/AIDS by late July, Xinhua said, an increase of five percent over the figure for April.

The United Nations estimates the true number of the killer disease in the country to be around 650,000."

Everyone loves the stats. I don't really get it in China. There is one constant number of 650,000 HIV positive people, which was adjusted from around 840,000 by the WHO, but never changes despite around 100,000 new infections every year…

I think what we can learn from all the misleading stats and contradictions in information is that no one really knows for sure. China is so massive that to constantly rely on such a solid statistic seems a little silly.

Here is what we know: HIV infections are on the rise; knowledge about how it is transmitted is limited; discrimination against those it infects is rampant; awareness of places to get tested and available treatments that make HIV a chronic illness rather than a fatal one is not widespread.

China is in a tough spot at the moment and what it needs is knowledge. Sure the health system should be prepared, doctors trained and AIDS patients cared for; but can we really hope to succeed in curbing rising infections with education so limited?

Since it first emerged in 1981 HIV has killed around 25 million people and around 5 million new people are infected every year. The global community is spending billions of dollars to fight its spread and I still can't see one clear example of a well defined success.

The news that China's reported infection rates are greatly increased over last year is troubling, but we shouldn't always wait for news like this to realize our efforts need to be scrutinized, new strategies implored and more innovation sought after. Awareness alone will never be enough.

In this issue

PTE Needs Your Help

Your donations help PTE continue to bring HIV/AIDS education programs to China's youth. 

A donation to PTE does not sit in a bank account, get allocated for "future projects" or wrapped up into high overhead infrastructure. 

A dollar invested in PTE today will be directly applied towards our projects within a month of us receiving it.

In our two years of work in China we've accomplished everything with a very minimal annual budget.  Our projects are cost efficient and we achieve maximum impact for each dollar invested in PTE.

Please consider making a tax-deductible donation by visiting our website's donation page.

Pass it on

If you know someone who may be interested in receiving this newsletter, you can easily forward

Reuters Reports Sharp Increase in new HIV Infections in China

// September 10th, 2007

China has reported 18,543 new HIV infections in the first half of 2007, which is near the reported number from all of last year.  A figure that is certainly worrying and indicative of China's growing epidemic, but also a bit confusing.

The article starts out with the simple facts:

"China reported 18,543 new cases of HIV/AIDS in the first half of this year, state media said, near the number for the whole of 2006.

Drug abuse was the main cause of new infections, Xinhua news agency quoted Han Mengjie, an official with AIDS Control Work Committee of the State Council, as saying in a report on Saturday."

There is always a large discrepancy between the amount of reported cases and the amount of actual or estimated cases.  This stems from lack of surveillance as well as the fact that worldwide only around 10% of HIV positive people actually know they are positive.  If we take a conservative estimate for China and say that 20% of people who are HIV positive know their status we could estimate that 18,543 reported infections translates to 92,715 actual infections.

Further confusing is the fact that most infections are reported to be drug related despite the fact that the government recently came out with a press release with the info that sex just overtook needle sharing as the main means of HIV transmission in China .  

The article continues:

"Han also warned of the danger of the virus spreading to the general public through unsafe sex and the greater migration of the infected population.

China has become increasingly open about AIDS in recent years, facing up to an epidemic once stigmatized as a disease of the West."

The first point is incredibly important as once the virus embeds itself in the general population, it will be devastatingly difficult to fight its spread.  While China has become more open about AIDS in recent years and their has been some phenomenal leadership on the issue from the powers that be in Beijing, there is still a lot of work to do on the local levels in preparing the infrastructure to deal with the growing infection rates.

One of the main things that can be influenced in a cost effective and efficient manner is attitude towards the virus, which is what PTE is trying to change.  As long as HIV is viewed as a virus of outsiders that affects the dredges of society, no country stands a chance in fighting it back.  It's impossible to try and fix a problem when the people it afflicts remain oblivious or negligently under-informed about it.  As long as discrimination continues to flourish and HIV is stigmatized as something people get for misbehaving we have no hope of curbing its spread.  

AIDS education isn't about going into a classroom and telling kids the do's and don'ts of sex and drugs.  It has to do with helping people understand the disease, fighting back stigma and preparing society as a whole to accept it as a public health concern like obesity, heart disease and cancer.  One that is treatable, not limited to affecting "bad people" but most deadly if ignored.  


"The nation had 214,300 officially registered cases of HIV/AIDS by late July, Xinhua said, an increase of five percent over the figure for April.

The United Nations estimates the true number of the killer disease in the country to be around 650,000."

Ah the stats, everyone loves the stats.  I don't really get it in China.  There is one constant number 650,000, that was adjusted from around 840,000 by the  WHO, but never changes despite around 100,000 new infections every year…  I think what we can learn from all the misleading stats and contradictions in information is that no one really knows for sure.  China is so massive that to constantly rely on such a solid statistic seems a little silly.

Here is what we know: HIV infections are on the rise; knowledge about how it is transmitted is limited; discrimination against those it infects is rampant; awareness of places to get tested and available treatments that make HIV a chronic illness rather than a fatal is not widespread.  China is in a tough spot at the moment and what it needs is knowledge. Sure the health system should be prepared, doctors trained and AIDS patients cared for; but can we really hope to succeed in curbing rising infections with education so limited?

Since it first emerged in 1981 HIV has killed around 25 million people, around 5 million new people are infected every year.  The global community is spending billions of dollars to fight its spread and I still can't see one clear example of a well defined success. 

The news that China's reported infection rates are greatly increased over last year is troubling, but we shouldn't always wait for news like this to realize our efforts need to be scrutinized, new strategies implored and more innovation sought after.  Awareness alone will never be enough.  

PTE Interview on NPR

// September 1st, 2007

An interview I did about PTE with Chicago's NPR affiliate aired last week.  It was part of the Global Activism segemnt of the Worldview program.  I talked about PTE's history and some general thoughts about where we are and where we want to be.  To hear the whole interview click on the following link:

http://audio.wbez.org/wv/2007/08/wv_20070823a.mp3